My New Reality
A couple of weeks ago, I received news that I never expected, not that I'd never thought about it. I was diagnosed with, to use the cold language of medicine, "invasive ductal carcinoma" of the left breast. In other words, breast cancer. To further complicate matters, a few days after that, I was told that the cancer was HER2 positive, which means that it was of a more aggressive type. HER is an acronym for a very long name of a protein that attaches itself to the receptors of the cancer calls, and actually HELPS them to grow. Nasty stuff.
Thus, my original prescribed course of treatment -- a lumpectomy followed by radiation -- was changed to months of chemotherapy, followed by surgery, radiation, and immunotherapy. A process that will take about a year, if I'm lucky. More on that "luck" thing in a minute.
The good news (and I'm always looking for it) is that the drugs that target this cancer specifically are very effective. They block HER2 and therefore stop the growth of cancer cells. Thus my prognosis is good. Also, I have 2 good friends who have had the same diagnosis and treatment and who are alive and well. They inspire me and encourage me.
None of this will be easy, but I'm determined. I'm a pretty stubborn person, as my friends and family know, and my life is too good to be thrown away right now. So I'm ready.
I call this blog "Shitty Luck" because of a story a friend told me. She is one of those rare survivors of ovarian cancer, still going strong after a dozen or so years. She is married to a doctor and is very active and fit. When she received the diagnosis, she said she was stunned, and asked her husband, "Why me? Why do I have this?" He just shrugged and said, "Shitty luck!"
That about sums it up.I do all the right things. I get regular checkups (I just had a mammogram in March!!!), eat healthy (vegetarian), exercise regularly, keep my weight at a good level. My oncologist said I am one of the healthiest patients she has. I'm only on ONE prescription medication -- for thyroid. Well, for now.
So why me? Shitty luck is pretty much the only explanation that makes sense. Cancer is capricous and although we know a lot about it, it remains a mystery to us in many ways. And until we can unlock its mysteries, it will continue to confound us, attacking the young and the old, the strong and the weak. And it will leave others -- the ones who are lucky -- alone.
I was going to keep a journal about my new reality, but have been encouraged by friends to start a blog. So here I am, hoping that my words will help in some small way. At the very least, writing about this will certainly help me. I also hope it will help others. I am fortunate in that I have many good friends, as well as family, who are supportive and loving. I am humbled by the outpouring of caring I've received. I am not alone.
I'm posting a photograph of the Bright Angel Trail, which runs from the Colorado River at the bottom of the Grand Canyon to the South Rim. I climbed this trail in 2015 after having been on the river for 7 days. That trip, being in the canyon for that time, was one of the best experiences of my life. I knew, however, that I had to climb out -- for 7.5 miles -- and that the hike would be a tough one. I trained for it as best I could, but have no mountains or sheer canyon walls to climb out where I live.
As I began the hike, early on the morning of Labor Day, 2015, I was anxious. I knew the journey would be hard. But I started walking. As I walked, climbing almost constantly (very few flat spots), I really struggled. I'd stop occasionally, turning to see views like the one below. I'd see how far I had come, and tried not to worry about how far I had to go. But of course I knew.
Every time I'd stop I'd chat with others on the trail, have a snack, enjoy the views. But in my mind I knew that I had to keep going, that I wasn't getting the job done by hanging around. So I kept going. It took me a little over 6 hours to finish, and I was sweaty and tired, but I did it. It was the toughest hike I'd ever taken, and I've done some tough hikes in my time. But I finished it. I really had no choice. No one was going to come carry me out.
This is how I think on the journey ahead of me now. It will be long, it won't be easy, but sitting around worrying about it won't get it done. I look forward to marking off the days as I travel down the road. Relying on my determination, and the love of my friends and family, to get me through this. Oh, and modern medicine. I'm really relying on that! And one day I'll stand at the rim and look down at where I've been, and say, "Crap! I hope I never have to do THAT again!"
Thus, my original prescribed course of treatment -- a lumpectomy followed by radiation -- was changed to months of chemotherapy, followed by surgery, radiation, and immunotherapy. A process that will take about a year, if I'm lucky. More on that "luck" thing in a minute.
The good news (and I'm always looking for it) is that the drugs that target this cancer specifically are very effective. They block HER2 and therefore stop the growth of cancer cells. Thus my prognosis is good. Also, I have 2 good friends who have had the same diagnosis and treatment and who are alive and well. They inspire me and encourage me.
None of this will be easy, but I'm determined. I'm a pretty stubborn person, as my friends and family know, and my life is too good to be thrown away right now. So I'm ready.
I call this blog "Shitty Luck" because of a story a friend told me. She is one of those rare survivors of ovarian cancer, still going strong after a dozen or so years. She is married to a doctor and is very active and fit. When she received the diagnosis, she said she was stunned, and asked her husband, "Why me? Why do I have this?" He just shrugged and said, "Shitty luck!"
That about sums it up.I do all the right things. I get regular checkups (I just had a mammogram in March!!!), eat healthy (vegetarian), exercise regularly, keep my weight at a good level. My oncologist said I am one of the healthiest patients she has. I'm only on ONE prescription medication -- for thyroid. Well, for now.
So why me? Shitty luck is pretty much the only explanation that makes sense. Cancer is capricous and although we know a lot about it, it remains a mystery to us in many ways. And until we can unlock its mysteries, it will continue to confound us, attacking the young and the old, the strong and the weak. And it will leave others -- the ones who are lucky -- alone.
I was going to keep a journal about my new reality, but have been encouraged by friends to start a blog. So here I am, hoping that my words will help in some small way. At the very least, writing about this will certainly help me. I also hope it will help others. I am fortunate in that I have many good friends, as well as family, who are supportive and loving. I am humbled by the outpouring of caring I've received. I am not alone.
I'm posting a photograph of the Bright Angel Trail, which runs from the Colorado River at the bottom of the Grand Canyon to the South Rim. I climbed this trail in 2015 after having been on the river for 7 days. That trip, being in the canyon for that time, was one of the best experiences of my life. I knew, however, that I had to climb out -- for 7.5 miles -- and that the hike would be a tough one. I trained for it as best I could, but have no mountains or sheer canyon walls to climb out where I live.
As I began the hike, early on the morning of Labor Day, 2015, I was anxious. I knew the journey would be hard. But I started walking. As I walked, climbing almost constantly (very few flat spots), I really struggled. I'd stop occasionally, turning to see views like the one below. I'd see how far I had come, and tried not to worry about how far I had to go. But of course I knew.
Every time I'd stop I'd chat with others on the trail, have a snack, enjoy the views. But in my mind I knew that I had to keep going, that I wasn't getting the job done by hanging around. So I kept going. It took me a little over 6 hours to finish, and I was sweaty and tired, but I did it. It was the toughest hike I'd ever taken, and I've done some tough hikes in my time. But I finished it. I really had no choice. No one was going to come carry me out.
This is how I think on the journey ahead of me now. It will be long, it won't be easy, but sitting around worrying about it won't get it done. I look forward to marking off the days as I travel down the road. Relying on my determination, and the love of my friends and family, to get me through this. Oh, and modern medicine. I'm really relying on that! And one day I'll stand at the rim and look down at where I've been, and say, "Crap! I hope I never have to do THAT again!"
What an eloquent post about a devastating experience. And remembering that climb out of the canyon is a great model to hang onto. You did it. You did that. You might have given up (choice) or fallen ("luck") but you prevailed. I am believing you will prevail here too. I'm so glad you're writing. It will be invaluable for you in countless ways. ❤️❤️❤️
ReplyDeleteThanks so much. A friend who just called me said he was surprised to hear how upbeat I was. I said I'm ready. No sense in beating my head against the wall. As another good friend said to me, "You can cry or you can laugh, but the reality stays the same.You may as well laugh." I do so much appreciate the support of friends like you.
DeleteBeautiful, my friend. I'm rooting for you!!!
DeleteThank you!!!
DeletePowerfully put my friend! I'm rooting for you too, with all my ❤️! I'm glad your writing about this. I totally believe in you! Tenacious and stubborn are great traits for this journey.
ReplyDeleteHmm something here is vaguely familiar. Ah yes, the Shitty Luck Club! Thats just shitty, how well I know and remember. But with your positive attitude and stubborn will I think you will be a stellar member of the club. Love you and your feisty spirit girlfriend! Inch by inch.....xoxo
ReplyDeleteI'm in your corner, too, Debra. Hope to get together when we return to Austin. We'll laugh a LOT. Love your post. With that kind of positive attitude, you'll be okay. Margie Vaughan (not Williams!)
ReplyDeleteAn excellent analogy, and just the right attitude for the road out of 'Shitty Luck.' You never give up when you've set your mind to succeed, and this trek will be one more to overcome. You're in great shape with a great attitude!
ReplyDeleteIf there is anyone that I know who has the determination to get through this to the other (cancer-free) side, it has to be you, Deb. I'm just sorry that you have to travel this road in the first place, but I am never more than a quick phone call away if you need anything. Truly, I hope you know how much you are loved by all of your friends and family, and that there is nothing I wouldn't do to help you during this season, no matter how big or how small!
ReplyDeleteLove your blog and great attitude! I witnessed your accomplishment on the Bright Angel Trail and will be there to do it again with you when you are ready. I love you and will be praying for you.
ReplyDelete